Forum der HSP-Selbsthilfegruppe Deutschland e.V.

hello i just joined i suffer from hsp since age 13 it runs in my family im 34 now and have found recenty that now i have use a wheechair as was on crutches for ten years,i have other health problems too not sure if they connected to hsp as i have epilepsy and astma and a heart condition where my heart goes into spasms causing angina attacks whih im on medication to try and stop them my epilepcy and heart condition drs having hard trouble stop and also i have water retenshion in legs and hands and feet which is under investigation to whats causing that.i have 2 daughters they might have hsp ,i was told they cant be checked for it till there 16 as it seams that most my family have it and show it as my nan has have hoists and in a wheechair and has carers help her,i have a inverted foot that have wear a foot splint to help it and i have arthritus in my knee that cant be fixed cos all what i suffer with so i have wear a brace there i also been having so much crippling back pain,i dont know alot about the hsp ,it was my mum that told me about this site and that there is a charity for hsp ,it be nice to beable learn about it and talk to ppl that have it too.